What I Learned After Walking 500-Miles Talking About Lewy Body

We are done! We did it! We walked 500 miles of the Camino de Santiago (the Frances route). And we created awareness for Lewy Body Dementia and raised a bit of money doing so. When my husband and I decided to combine our 500-mile walk in northern Spain on the Camino de Santiago with fundraising Continue Reading →

Fantastic Conversations about Lewy Body Dementia

Today is Day 30 of our walk on the Camino de Santiago and we only have 5 days left. We have walked over 450 miles and have less than 60 to go! Sharing Personal Experiences with Lewy Body Dementia I have talked with a lot of people over the past month about Lewy Body Dementia Continue Reading →

313 Miles Walked and Dozens of People to Talk to about Lewy Body Dementia

On my God! We have walked 313 miles in 20 days on the Camino de Santiago and have just under 200 miles left to walk. The half-way point was a major accomplishment, not only because of the amount of time and walking we have already done but also because the half-way point happens to be Continue Reading →

Walking & Talking with People From Around the World About Lewy Body Dementia

Walking for LBDA.org

Walking & Talking with People From Around the World About Lewy Body Dementia It’s Day 11 and we have completed 115 miles on our 500 mile-walk on the Camino de Santiago for the Lewy Body Dementia Association. Now walking every day is a habit. Yesterday we took an extra day to sightsee around the city Continue Reading →

On the Camino for the Lewy Body Dementia Association

Beginning the Camino for LBDA.org

Our First Days on the Camino for the Lewy Body Dementia Association We have been walking for 4 days and have traveled 49 miles on the Camino de Santiago in Spain trying to raise money for the Lewy Body Dementia Association. The Camino is 500 miles and it will take us approximately 35 days to Continue Reading →

Excerise Cuts Risk of Dementia by 50 Percent

Dad Never Stopped Walking

I’ve been walking a lot to train for our upcoming 500-mile fundraising walk for The Lewy Body Dementia Association. I love to listen to podcasts to pass the time–10 miles takes a long time to walk! The other day I listened to Brain Rules by Dr. John Medina, a molecular biologist, and Seattle Pacific University Continue Reading →

Training for Our Lewy Body Fundraising on the Camino de Santiago

We just began our training for our Lewy Body fundraising on the Camino de Santiago. In April we will walk more than 500 miles on the ancient pilgrim road in northern Spain to benefit the Lewy Body Dementia Organization. We will have to walk a minimum of 12 miles per day to complete the walk Continue Reading →

Assisted Living Facilities and Lewy Body Dementia

Often there comes a time when it’s so difficult to help and take care of someone with Lewy Body Dementia (LBD) that family must move the person to an assisted living or memory care facility. In my Dad’s case, he chose to go because my Mom was having a difficult time dealing with his disease and it Continue Reading →

Good Days & Bad Days with Lewy Body Dementia–Fluctuating Dementia

One of the key differences between Lewy Body Dementia (LBD) and Alzheimer’s is that one day the person can be “almost normal” and the next “completely out of it.” It’s a fluctuating dementia. Actually, it can even change by the hour. Fluctuating Cognition For example, with my dad, some days we could have really good Continue Reading →

First Signs of Lewy Body Dementia

When you see someone every day, you don’t notice small changes in appearance or behavior. However, if you only see someone once a year, small changes stand out. That’s what happened in my Dad’s case. For about four years, since he retired at age 65, my Dad had been very tired and was seeing his Continue Reading →